You would never guess Noah Morgan has heart disease.
The one-year-old, from Maesteg, is wild and energetic like any other little boy his age, but unfortunately Noah’s heart condition means he will always be different.
Noah was born with a condition called Tetralogy of Fallot, which means he was born with four heart defects that cause oxygen-poor blood to pump back to the body through the hole in the wall between the right and left ventricle instead to be pumped. to the lungs.
Read more: The little boy born with half a heart who can’t play contact sports properly – but still loves being on a football team
Noah’s mother, Bethan, found out about Noah’s condition after being referred for fetal monitoring exams when the sonographer couldn’t see Noah’s heart well during the 20-week checkup.
Bethan said: “I remember just looking at the lady when she found her heart and I could tell something was wrong. I looked at the screen myself and I knew we weren’t. we weren’t doing well.
“The lady looked at us and me and dad and said, looks like baby has something wrong with his heart.
“We were referred to Cardiff Fetal Medicine where they picked up Tetralogy of Fallot through the scans, and from there we got a lot of scans because he was so small, and they also found that he had a horseshoe kidney.”
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Noah was born on June 26 and was fine at first, Bethan recalls breathing very well on his own. But Noah was transferred to NICU after not eating properly.
He underwent his first surgery at Cardiff Hospital just days away.
“Noah was hospitalized until he was six weeks old. But after that he was doing really, really well. But at six months he turned blue.
“He cried and cried, continuously, I had never seen him like that. When he had a bruise, we had to squeeze his legs to bring him back.
“We were rushed to Bridgend Hospital in an ambulance where they gave him medicine to slow his heartbeat and he was referred for his second operation, his first open heart operation at the age of six and a half months.
“Noah is our second child, the pregnancy I had with our daughter, Summer, was completely normal. So having all of this with Noah has been really crazy.
“This all happened during Covid too so it was difficult because I didn’t have anyone to go with me to scans and operations. It was so hard to deal with. Like I lost so much weight , I was so sick with anxiety and depression .I don’t wish anyone to go through this.
Noah’s heart has been fully repaired by surgeons at Bristol Hospital, but Bethan says it’s not the end for Noah.
“Noah will always have heart disease. Although we are lucky to have been able to fully repair his heart now, we don’t know what he will need in the future.
“His last check went well, and we have another next month, so I’m keeping my fingers crossed that everything goes well. But he will need checks for a long time.
“Noah is the happiest of little humans, he made our lives so complete, he’s our little hero.
“His energy is crazy and we love to see him so active like all toddlers, he will fight off heart disease.
“His sister, Summer, adores him, she found it hard being away from me Noah and Dad during his surgery, we spoke to Summer about Noah’s condition, she says he’s so brave, and she says he has a special heart. Their bond is amazing.”
Bethan added: “We think he’s going to get into football already, he knows exactly how to dribble and kick a ball. There’s no stopping him.”
Bethan is now skydiving to raise money for a charity she says has been so important to her, Heart Heroes.
“It’s my first skydive and I’m really scared. But I’m sure there’s nothing scarier than having your child sick and having an operation. Nothing is going to scare me . Like, that was the worst if it could ever happen. like, so I think it’s gonna be okay.”
“Heart Heroes gave me so much help and support, and they connected me with other families who were going through what we were. Honestly, I can’t thank them enough.”
Bethan is skydiving from Swansea Airfield on March 26, and if you’d like to donate to her GoFundMe, you can do so here.
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