Louisiana baby born with heart defects released from hospital

It was a celebratory morning at the children’s hospital. A baby who has spent his entire life in hospital has been released to go home. Averly Krull was born in April 2021 at 38 weeks and has been in children’s hospital ever since. Averly, who has been lovingly named the “NICU Queen,” has a rare condition called Pentalogy of Cantrell. According to Children’s Hospital, the condition is the presence of three birth defects – an omphalocele, tetralogy of Fallot and diaphragmatic hernia. According to Averly’s mother, Sara Armand, Averly underwent a tracheotomy in August. In November, she had her tetralogy of Fallot and her diaphragmatic hernia, and she will have her omphalocele repair when she was 3 or 4 years old. February is the month of the heart, a month that now has a special meaning for this family. Tetralogy of Fallot is a rare combination of four congenital heart defects, according to Children’s Hospital. “She had heart surgery 10 weeks ago and she is so happy now. She is more comfortable,” Armand said. After her heart surgery, Averly had to have a skin chart, which also took the shape of a heart. Now, on the first day of Heart Month, Averly is finally going home to her parents. in the parish of Avoyelles. His hospital stay totaled 280 days. Averly’s stay had its share of ups and downs – one low point included the death of Armand’s father. “While we were here, my father had a relapse of cancer and he passed away in June. He met once. I think God sent her to me for a reason. She has her pretty blue eyes,” Armand said. Armand’s message after his daughter’s nine-month stay in hospital is: “Don’t give up. Keep fighting and keep your faith. Don’t give up on something you love. » Learn more about Averly and her condition here.

It was a celebratory morning at the children’s hospital. A baby who has spent his entire life in hospital has been released to return home.

Averly Krull was born in April 2021 at 38 weeks and has been working at The Children’s ever since.

Averly, who has been lovingly named the “NICU Queen,” suffers from a rare condition called Pentalogy of Cantrell. According to Children’s Hospital, the condition is the presence of three birth defects – an omphalocele, tetralogy of Fallot and diaphragmatic hernia.

According to Averly’s mother, Sara Armand, Averly underwent a tracheotomy in August. In November, she had her tetralogy of Fallot and her diaphragmatic hernia, and she will have her omphalocele when she is 3 or 4 years old.

February is the month of the heart, a month that now has a special meaning for this family. Tetralogy of Fallot is a rare combination of four congenital heart defects, according to Children’s Hospital.

“She had heart surgery 10 weeks ago and she is so happy now. She is more comfortable,” Armand said.

After her heart surgery, Averly had to have a skin chart, which also turned out to be in the shape of a heart.

Now, on the first day of Heart Month, Averly finally returns home with her parents to the parish of Avoyelles. His hospital stay totaled 280 days.

Averly’s stay had its fair share of ups and downs – one low point included the passing of Armand’s father.

“While we were here, my father had a relapse of cancer and he passed away in June. He met [Averly] once. I think God sent her to me for a reason. She has her pretty blue eyes,” Armand said.

Armand’s message after his daughter’s nine-month stay in hospital is: “Don’t give up. Keep fighting and keep your faith. Don’t give up on something you love.

Learn more about Averly and her condition here.