Fairly common disabilities in adults with congenital heart defects

Of 1,478 patients, 40% reported disabilities, with cognition being the most prevalent (29%).

Additionally, among patients reporting a disability, 45% reported receiving disability benefits and 46% were unemployed.

Patients with more than one disability were more likely to be female and to be born to black mothers. They were also more likely to have severe coronary heart disease and non-cardiac birth defects.

In general, adults with coronary artery disease and cognitive, mobility and self-care impairments had impaired mental health-related quality of life (HRQOL), while those with any type of disability had impaired physical HRQOL.

“To our knowledge, this analysis is the first to show an association between disability and race and non-Hispanic black maternal ethnicity in adults with coronary artery disease,” the lead author wrote. Karrie F. downing, mphwith the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention, and colleagues. “In our analysis, people with disabilities had a lower quality of life than the general U.S. population, while people without disabilities had better Physical and mental HRQoL.

Downing et al. also noted that policy makers can do a lot to improve care for these people.

“Implementing policies and practices to recognize and support people with disabilities within the general CHD community can lead to better connection and use of resources and ultimately to better health and well-being. -be improved,” they wrote.

Read the full study here.