Disabilities quite common in adults with congenital heart defects

Of 1478 patients, 40% reported disabilities, cognition being the most prevalent (29%).

In addition, among patients reporting a disability, 45% reported receiving disability benefits and 46% were unemployed.

Patients with more than one disability were more likely to be female and to have been born to black mothers. They were also more likely to have severe coronary artery disease and non-cardiac birth defects.

In general, adults with coronary artery disease and impaired cognitive ability, mobility and self-care had an altered quality of life related to mental health. (HRQOL), while those with any type of disability had an impaired physical HRQOL.

“To our knowledge, this analysis is the first to show an association between disability and non-Hispanic black maternal race and ethnicity in adults with coronary artery disease,” wrote the lead author. Karrie F. Tear down, MPH, with the National Center on Birth Defects and Developmental Disorders in the Centers for Disease Control and Prevention, and colleagues. “In our analysis, people with disabilities had a worse HRLO compared to the general population of the United States, while people without disabilities had a better quality of life. Physical and mental HRQ.

Downing et al. also noted that policymakers can do a lot to improve care for these people.

“Implementing policies and practices to recognize and support people with disabilities within the broader CHD community can lead to better connection and better use of resources and, ultimately, improved health and wellness, ”they wrote.

Read the full study here.


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