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2-year-old Skylar has four heart defects and her parents are looking for ideas

SURRY COUNTY, NC (WBTV) – Christy Lawson was 20 weeks pregnant with her first baby, Skylar Rae Lawson, when she and her husband learned their baby girl was having heart problems.

“At 28 weeks pregnant, we learned what those issues were,” her father, Justin, said from their home in Mount Airy. “She had ‘Tetrology of Fallot with Pulmonary Atresia.’ This basically means she had four heart defects, in addition to not having a pulmonary artery.She was born weighing 3 pounds, 8 ounces, and we spent six weeks at Brenner Children’s Hospital in Winston- Salem.

“At five months, Skylar’s oxygen started to decline,” Justin continued. “We knew it was time to consider open heart surgery. At the age of seven months, she underwent this operation at Levine Children’s, to establish a good connection between her heart and her lungs.

Eight hours after this operation, her parents learned that the surgeon was unable to fully repair this connection and instead placed a conduit into Skylar to help better oxygenate her lungs.

The problem is that now, at two years old, Skylar is slowly outgrowing the conduit. Because of this, her father said she would need a second open-heart surgery.

More pictures of Skylar(Family photo)

“Our daughter has many complexities in her anatomy,” Justin said. “It raises issues as to whether she can be a candidate for full repair surgery. If she doesn’t get one, chances are it will affect her quality of life.

As parents desperate to help, Justin and Christy turn to Stanford, home of the leading expert in cases like Skylar, for a second opinion on their daughter’s complex heart condition.

“It’s a big step for us,” they said. “But ultimately we want to do our best for Skylar and give her the best quality of life possible. Stanford is 30 hours from us, so even reaching out to their experts is a big step forward, but we have to try. She’s our little girl. We have to try something.

You never know where #MollysKids stories may go and who knows what a local kid is up against, but if any of you have any specific suggestions, I’m sure Jason and Christy will read all the comments. which you post below.

And this photo? It’s cute, isn’t it? It is also very significant.

These beads that Skylar is holding are called Heart Beads. Each is a milestone Skylar took at PICU after her heart surgery.

Welcome, Skylar, to #MollysKids.

Also, a little bird said that you’re going to be a big sister soon… that your mom is going to have a baby boy. Congratulations to you, Christy, and your entire growing family.

More photos below.

– Molly

Skylar and her family
Skylar and her family(Family photo)

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